Butter Fly Rash

Two years ago and half years ago I was struck with a horrific unknown health condition. I was already health challenged and wrote a book on how to cope. Then Butter Fly Rash hit and has floored my physical, emotional & neurological world. The only thing that helped was Zpac antibiotic.

Physically my face broke out in a rash thought to be shingles wasn’t. Then it moved across face around eyes and all over my cheeks and into my scalp. I lost a lot of hair. My skin felt like acid had been pored on my face. The rash had yellow pustules and I itched beyond sanity. My finger and hand joints have started to deform and hurt. My feet couldn’t stop cramping, I had headaches at times and the bones around my eyes ached, At time my vision would blur. My blood pressure would race and pulse. Nausea to the max. My energy level was below zero. I became so weak it was hard to hold myself up. I had a chronic dry cough and phlegm would come up. My brain became attacked and I didn’t know what I was going to do and I became frightened about my life.

I have been on Zpac toal of two years when a friend on FB thought I might have Lupus Miliaris Disseminatus Faciei. After researching what helps I found Zpac and happened to have one in frig. Started taking when my brain would get attacked. It seems to help. Until recently it seems to be wearing off its affects for me.

This has been repeating itself monthly for two and half years now. I don’t know if it was caused by a possible black mold exposure or other bacterias exposed to? Every Doctor had their own theory, Carcinoid syndrome, Breast Implant Illness, Behcets disease, but no one would biopsy my face. My now Physicians Assistant needs to have me go “Under”, so he can help me with biopsies, It will be a dark and frightening place.

All I know is my God is bigger than this!

#TheSecretLifeofHiddenDisabilities

My book “The Secret Life of Hidden Disabilities”

Thank you to the UFCW local 135 “The Worker” August 2017 news letter and Communications Director Lori Kern for interviewing me and my book. This last year I had to returned to the union as I do yearly for my pension papers. Lori and I met while I was in lobby with Chloe by my side.  We spoke about me helping a friend with her dog becoming a service dog.

Well a week later, I receive this awesome call that from Lori asking me if she could interview on me and about my book since I had been a retail food clerk and now a retiree. I was beyond elated, and happy, and said, “Yes!”

Handicap Parking Spaces

How come so many people are violating tenant parking spaces and Handicap Parking spaces in HUD buildings?

 

Tonight I witnessed a car receive a parking ticket because the car was parked in a Handicap space illegally. I decided to sit, watch, and wait. I was intrigued to see what the person would do when they arrived to their ticketed car. Well, I see a lady with her family walking to her car she buckles up her kids, and away she goes….I literally followed her by chance because it just so happened she was traveling in my direction.

 

What is the fine for parking illegally in a Handicap space in San Diego California and what is the fine when you drive off and may loose a ticket you don’t see on your window?

 

San Diego State Disable Student Services

 

I had to go to SDSU today for my taxes. I am sick and detoxing from my health and surgery. Talk about double duty and not feeling well. Everyone helping with my taxes at the Love Library was super compassionate towards me not feeling well and having to assist me with help.

 

I found a great parking spot off Hardy ave. then had to walk through the center of SDSU to the Love Library for my taxes. As I am trying to fill out papers my mind is struggling to focus as I was shaking. I manage to hold myself up barely. Before I go, I inquired about help getting to my car because the stabbing pain in my stomach was more than I could bare.

 

I call the campus security they don’t help people to cars unless night time. I inquire about other options as I am disabled and they gave me the number to Disabled Services. I call and got a very unkind woman / receptionist I presume.

 

I said I am disabled person on campus and need a ride to my car because I am struggling with my health. She says, “We don’t drive people to their cars” I said, “I just need to get close enough to get to my car.” She then hits me with, “How did you get their!?” I am thinking “Really, who talks to a disabled person like this?” A few long minutes go by and see a van go by. I  called back thought they missed me. Called again as I could hardly stand or sit, so then the Disabled Service receptionist scolded me on the phone for calling back.

 

The two men who picked me up in a cart where kind and got me to the very edge of campus grounds and I could see me car….

 

San Diego State Disabled Services will be getting a call on Monday from The Hayliegh Project regarding the hostile treatment towards me as a disabled person. Thoughts what about the other disabled people who call and need help. What about compassion and empathy for people who are disabled?

 

People’s behavior are not a reflection me it is a reflection of themselves. Problem the reflection wounded a hurt woman today and that was me. .

 

I don’t need to hear, “She may have had a bad day” I had a horrific day and didn’t miss treat anyone for my health issues.

2016 Detoxing

2015, was a rough year I endured major surgery and contracted multiple anaerobic bacteria’s. The fear of contracting anaerobic bacteria frightened me out of my skin. I said “God help me” and then I remembered Dr. Whiting with Phoenix Nutritionals.

 

   Dr. Whiting has formulated the “Oxy Cleanse Kit” which kills all viruses, bacteria’s and anaerobic bacteria in the body. The product also kills mold in the body, breaks down chemicals in soft tissue, and helps the body to eliminate from the body.

 

   On the second round of “Oxy Cleanse Kit” at the end of it, I broke out in the 5 ½ inches long, weirdest, and ugliest hot reddish / pink triangle on my leg. I knew at that point that I needed to stay on detox in order to come out the other side, so I ordered my third round of “Oxy Cleanse Kit” again. Then a few days later, the top layer of skin started peeling off and then yellow puss started festering out my leg. Then a few inches away another wound started.

 

  

 

My doctors called in antibiotics for anaerobic bacterial infection. I honestly said to myself, “I am going to fight this on my own!” My Russian friend she wanted me to try this Russian formula. It is Potassium Permanganate Crystals they have to be formulated correctly to use properly. My leg started healing. Now half way through my third “Oxy Cleanse Kit” I caught a cold and rashes on my face.

 

  

 

What I have researched and speaking with Dr. Whiting is that I have to ride this out, so my body can eliminate the toxins, and crude that has been living in my sick body. This is getting rough the fog is making it rough to concentrate. Goals have been put on hold and yet I am trusting in a process even though it is physically and emotionally difficult.

 

https://phoenixnutritionals.com/

 

https://www.yasabe.com/en/san-diego-ca/d-715839516-royal-pharmacy-group-pharmacies-furniture.html

 

http://www.vitacost.com/

 

 

Chloe’s World

Chloe has been making the rounds at Grossmont Post Acute Care. It made my dad happy to have her visit him while rehabilitating from back surgery. Many of the patients and staff went goo-goo-gaga over Chloe!

#servicedogs #smiles

Hidden Disabilities gets it again!

How disabled do I have to look to be disabled with the use of a service dog? What happened to me was horrific today. Leaving Costco in La Mesa, my service dog and I were heading to the car. Out of nowhere, I hear this man yelling at me from his car that dogs aren’t allowed in stores. I just ignored him and went on my way then he starts his car and keeps yelling at me and I ignore him again. I get to my car to unload my things and this man pulls his car up next to me and keeps yelling at me about dogs not being in a store. I started yelling, “Help and call 911 please this man is harassing me because I have a service dog!” Two nice men, employees working for Costco started coming over to me. They were stunned themselves. I grabbed my phone as it was in the car and signing in to take pic and call 911 then the man drove off.

 

This is what is called emotional harassed and a violation to my space. Now I am in pain and a bit headachy from the adrenaline that is flowing through my body. It confirms why I need to publish my book on hidden disabilities and discrimination.

Chloe’s World

What can I say Grossmont Hospital is great! My father has been a patient for the last few days due to back surgery; the BIG question is where to rehabilitate? In addition, will my dad go? I am glad I have been running “The Hayliegh Project” one of the services I offer is to act as liaison for people in the hospital who need an advocate to help make decisions for them. Now I can help my parents who had no idea that my dad was going to need extra medical help and / or where to place him?  From the work I have done, I knew right away, where I needed my dad to go and which was the nicest facility.  I also knew we had to jump and be proactive asap. Our caseworkers Will and Carl couldn’t resist a pic w/ Chloe and who couldn’t resist a pic with them!  We also met Daria who works in nutrition not only was she kind, but she couldn’t stop smiling because of Chloe.

Sweet little note: I said, “Dad I know you want out of here and I want you out of here too.” I said, “Dad I cannot even handle ER and when I leave ER I cannot get home fast enough”, so I said, “Dad you have to dial it in and work it out, so you can get home. This means move your muscles!” He was so cute he started lifting his legs in the hospital bed saying, “Kim I moving my legs and I have to dial it in!.” I shared with him how proud I was of him… Go dad!

What a way to end our day helping my parents and making people smile! WOOF!

#hiddendisabilities #backsurgery #Chloe’sWorld

Day 9 Detox Anaerobic Bacteria and Candida

The word for me today is, “Discipline.”

I am detoxing from relapsing with a breakout of anaerobic bacteria. There is no test to show if I will break out unless I have a breakout and by then it is too late off to hospital. The bacteria can affect the lungs, heart valves, intestines, or bladder. Dr. Whiting owner of Phoenix Nutritionals formulated a product Oxy cleanse. This product kills all bacteria and candida. I need to look at candida because I had been on many antibiotics before surgery. People say, “Oh take probiotics” Like I don’t know! There comes a time when we need more help then probiotics. When done with this detox in my detox kit is a high dose of special probiotics to build the immune system up.

My day started with a homemade isolated protein shake and lot of immune building Seameal. Chloe and I did our spiritual practice then hit the Pilates Machine, and the my addicting Kale salad. I folded and organized my t-shirt cupboard and going to have an awesome roman salad. The roman salad will have steamed carrots, edamame’s, garbanzo beans, hard-boiled eggs, and red onion. Dressing pressed garlic, Dijon mustard, olive oil and balsamic vinegar.

Detox Anaerobic Bacteria

Source: Detox Anaerobic Bacteria

Source: Detox Anaerobic Bacteria