Posts Tagged ‘lyme disease’

My book “The Secret Life of Hidden Disabilities”

October 15, 2017

Thank you to the UFCW local 135 “The Worker” August 2017 news letter and Communications Director Lori Kern for interviewing me and my book. This last year I had to returned to the union as I do yearly for my pension papers. Lori and I met while I was in lobby with Chloe by my side.  We spoke about me helping a friend with her dog becoming a service dog.

Well a week later, I receive this awesome call that from Lori asking me if she could interview on me and about my book since I had been a retail food clerk and now a retiree. I was beyond elated, and happy, and said, “Yes!”

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Chloe’s World

November 10, 2015

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What can I say Grossmont Hospital is great! My father has been a patient for the last few days due to back surgery; the BIG question is where to rehabilitate? In addition, will my dad go? I am glad I have been running “The Hayliegh Project” one of the services I offer is to act as liaison for people in the hospital who need an advocate to help make decisions for them. Now I can help my parents who had no idea that my dad was going to need extra medical help and / or where to place him?  From the work I have done, I knew right away, where I needed my dad to go and which was the nicest facility.  I also knew we had to jump and be proactive asap. Our caseworkers Will and Carl couldn’t resist a pic w/ Chloe and who couldn’t resist a pic with them!  We also met Daria who works in nutrition not only was she kind, but she couldn’t stop smiling because of Chloe.

Sweet little note: I said, “Dad I know you want out of here and I want you out of here too.” I said, “Dad I cannot even handle ER and when I leave ER I cannot get home fast enough”, so I said, “Dad you have to dial it in and work it out, so you can get home. This means move your muscles!” He was so cute he started lifting his legs in the hospital bed saying, “Kim I moving my legs and I have to dial it in!.” I shared with him how proud I was of him… Go dad!

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What a way to end our day helping my parents and making people smile! WOOF!

#hiddendisabilities #backsurgery #Chloe’sWorld

Detox Anaerobic Bacteria

September 12, 2015

Source: Detox Anaerobic Bacteria

Source: Detox Anaerobic Bacteria

Discrimination and Denied My Civil Rights!

December 18, 2014

12/4/2014

Service dog

I am Chloe and I have an important job!

What would you do if you lost your civil rights?

AAAAA Management Company,

To Whom It May Concern:

CC:  Memo of December 2, 2014

Occupants received a notice on our doors Dec 2nd 2014. Included is a section concerning dogs and their acceptable walking areas?  It states we are NOT ALLOWED to walk our dogs or let them urinate or defecate in any areas accessible to the rest of the tenants. We will be written up if they do so. We must leave the building and curb our dogs on the street to obey the notice, even though there are appropriate areas on the grounds for them to relieve themselves.  Of course tenants should be given warnings if they do not pick up after their dogs.

My service dog and I are allowed equal access under Unrah Act, ADA, and Fair Housing. If I am not allowed access, it means that I am being discriminated against under all three rules that protect people with disabilities and the use of a service dog.

  • The closest exit is the lobby door. When I am unable to walk due to multiple disabilities and getting my service dog outside the lobby door is most accessible.
  • When in serious pain or illness, I am in PJ’s and because of this memo; I would be exposed to public view and thus be humiliated. I comply with going out the front of building when I feel healthy and safe.
  • I have lived in HUD housing for 8 years give or take. The letter states that past managers and management did not allow dogs around the property. TTTTT management and all managers have allowed me the enjoyment of the property with my service dog by my side whether for enjoyment or if I needed to get to closest exit for my service dog.
  • After signs, NO PETS had been put up I was still able to enjoy the back sitting area’s on the bench’s, because my service dog is not a pet. No pets are allowed in rec room and, yet I am allowed with my service dog. What is the difference between sitting in the back of building 1 and the rec room?
  • If I couldn’t walk for one day due to my disability, management accommodated me by letting my service dog out quickly in the courtyard so that my service dog could go potty.
  • This means all other tenants can go in back of building 1 and I cannot with my service dog.

I am grateful for where I live and do everything I can to follow rules.

The following:

                                          ADA AND UNRUH ACT

The Unruh Act was made up to protect our civil rights by limiting discrimination due to age, color, sex or being disabled. Access in areas of public places, education, employment, public transportation, housing and much more.  The ADA is defined as The Americans with Disabilities Act (ADA) and gives federal civil rights protection to individuals with disabilities similar to those provided to individuals based on race, color, sex, national origin, age, and religion.  It guarantees equal opportunity for individuals with disabilities in public accommodations, employment, transportation, housing and state and local government services and telecommunications.

FEDERAL LAW

The ADA prohibits discrimination against disable people.

No individual shall be discriminated against on the basis of disability in the full and equal enjoyment of the goods, services, facilities, privileges, advantages, or accommodations of anyplace of public accommodation by any person who own… or operates a place of public accommodation.

(42 U.S.C. 12182 (a).)

aHUD No. 13-060A
Shantae Goodloe
(202) 708-0685
FOR RELEASE
Tuesday
April 30, 2013

HUD ISSUES NOTICE ON ASSISTANCE ANIMALS AND REASONABLE ACCOMMODATIONS FOR PERSONS WITH DISABILITIES

WASHINGTON – The U.S. Department of Housing and Urban Development (HUD) today issued a Notice reaffirming that housing providers must provide reasonable accommodations to persons with disabilities who require assistance animals.  The “Notice on Service Animals and Assistance Animals for People with Disabilities in Housing and HUD-Funded Programs” discusses how the Fair Housing Act and the Americans with Disabilities Act (ADA) intersect regarding the use of service or assistance animals by persons with disabilities.

The Fair Housing Act prohibits landlords from discriminating based on disability, race, color, national origin, religion, sex, and familial status. The ADA prohibits discrimination against people with disabilities in employment, transportation, public accommodations, communications, and state and local government activities.  Both laws contain provisions which address the use of service or assistance animals by people with disabilities.  While the Fair Housing Act covers nearly all types of housing, some types of housing, such as public housing, are covered by both laws.

“The vital importance of assistance animals in reducing barriers, promoting independence, and improving the quality of life for people with disabilities should not be underestimated, particularly in the home,” said John Trasviña, HUD Assistant Secretary for Fair Housing and Equal Opportunity.  “Disability-related complaints, including those that involve assistance animals, are the most common discrimination complaint we receive. This notice will help housing providers better understand and meet their obligation to grant reasonable accommodations to people with disabilities that require assistance animals to fully use and enjoy their housing.”

HUD’s new notice explains housing providers’ obligations under the Fair Housing Act, including the requirement to provide reasonable accommodations to people with disabilities who require assistance animals.  Pet restrictions cannot be used to deny or limit housing to people with disabilities who require the use of an assistance animal because of their disability.  Housing providers must grant reasonable accommodations in such instances, in accordance with the law.    The guidance also describes the Department of Justice’s revised definition of “service animal” under the ADA, as well as housing providers’ obligations when multiple nondiscrimination laws apply.

The Americans with Disabilities Act requires equal access for people with disabilities using trained service dogs in public accommodations and government facilities.  Under the Fair Housing Act, housing providers have a further obligation to accommodate people with disabilities who, because of their disability, require trained service dogs or other types of assistance animals to perform tasks, provide emotional support, or alleviate the effects of their disabilities.

HUD’s and the Department of Justice’s Joint Statement on Reasonable Accommodations provides additional information regarding housing providers’ obligations to provide reasonable accommodations.  The Department of Justice has also published a fact sheet on service animals and the ADA.

Click here to read HUD’s new notice.

Persons who believe they have been denied a reasonable accommodation request may file a complaint by contacting HUD’s Office of Fair Housing and Equal Opportunity at (800) 669-9777 (voice) or (800) 927-9275 (TTY). Housing discrimination complaints may also be filed by going to www.hud.gov/fairhousing, or by downloading HUD’s free housing discrimination mobile application, which can be accessed through Apple devices, such as the iPhone, iPad, and iPod touch.

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HUD’s mission is to create strong, sustainable, inclusive communities and quality affordable homes for all.
HUD is working to strengthen the housing market to bolster the economy and protect consumers; meet the
need for quality affordable rental homes: utilize housing as a platform for improving quality of life; build
inclusive and sustainable communities free from discrimination; and transform the way HUD does business.
More information about HUD and its programs is available on the Internet at
www.hud.gov and
http://espanol.hud.gov. You can also follow HUD on twitter @HUDgov, on facebook at
www.facebook.com/HUD, or sign up for news alerts on HUD’s News Listserv.

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I look forward to working this matter out.

Thank you,

Hidden Disabilities

September 26, 2014

Okay I am bummed out! I know that my health condition causes me lots of low situations. I can only take so much. Two good days and now flat lined with severe acute stomach pain and swelling. Now I am using a neighbor’s walker “REALLY!” I called the doc for a walker with a seat, so I can sit every few steps, when needed.

I just got over a month of bacterial infection and being house bound.

Being angry about this is healthy because the only way through is through. Blocking my feelings would mean denial. Thank you for listening. I have a grateful list, so that I can remember what I have in life, and what matters.

Hidden Disabilities

September 22, 2014

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Looking at the glass half full. I got my Pilates workout in and the cool thing about my machine is it has a trampoline I can change out from the Pilates bar. No stress on bladder. You Lie down and jump “It is really cool!” It is a really great workout and none evasive to the joints.

I chose the trampoline because I tried to take a walk today with Chloe, and she wouldn’t let me go. My l-5 and SI disc is starting to hurt and walking was painful. Chloe knew!

If we don’t use it we lose it. As a person living with multiple health conditions it is absolutely important to keep the body and spine as strong as I can. Working out releases endorphin’s, and endorphin’s feel good.

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WOOF!

Chloe’s World

September 16, 2014

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What can I say about the job of a service dog, my Chloe! She has been patient staying in doors with me and keeps loving me up. Yesterday I started crying after weeks of being sick. Chloe came to me and kissed my tears from my face. Then she went and got a toy from her basket to share with me. We are being patient and continue to believe in everything there is a gift. Woof!

Hidden Disabilities

September 9, 2014

Chronic Fatigue Immune Disease (CFID). It causes me horrible bouts of debilitating exhaustion; it is insanity at its best. I have different cycles some cause my lungs to feel like a deflated leather football, my vocal cords strain to talk and I am unable to sit up hardly. Sometimes my body aches like the worst flue hit me or like someone took a baseball bat and beat up every muscle in my body. Then there are times where I don’t have any pain and my body is just worn out like a rag doll who sits in a corner.
My temperature can drop down to 97 degrees. My appetite usually stops and when it hits for days I crave my air popped popcorn (my comfort food). I have had people ask me how I stay in shape if I am house bound. I have a chronic fatigue plan that I stick with.
My comprehension can be effected making it difficult to read or obtain any information that is important. I keep things organized because I can forget if I put something in the wrong place.
What is a service dog suppose to do?
DSCF6279 I love you Chloe!

April 8, 2014
Regenerating a story for those of us struggling with “Hidden disabilities” and the use of a service dog. San Diego Animal Control is saying they recognize those with hidden disabilities and we don’t need a Cal assistant dog tag. Question who is getting a tag and I am not? My Chloe is NOT a “Comfort” dog she is being trained as a “Service dog” for a PHYSICAL DISABILITY. She meets San Diego qualifications as she is providing a service that benefits my medical safety by alerting me when I need help and retrieves items and medication.

This Service dog tag has gotten out of control making it hard for those of us who are in “Need of service dog tag and suffer in silence!”

See More

Disabled woman upset over service dog tags
A San Carlos woman contacted 10News after she says the San Diego County Department of Animal Services is refusing to recognize her dog as an assistance dog. Kimberly Ryan has disabilities that may not be…

Severe Pain suffering

March 4, 2014

Here it comes and God help me! Chloe is really doing her job even though I hurt I try to get out as best as I can. Chloe is grounding 100% because she doesn’t want me to walk. Good girl Chloe!

What do I do? I have endured insane pain since the middle of Feb  2014 the original pain triggered end of Jan, 2014. It is “Trying my soul” both physically, emotionally and spiritually. My spirituality is so important to me and all I can do is hang on to the belief that God is with me since I spiritually beat. To beat to pound on Gods door. My sanity has turned into a Sunami and I don’t know how to save myself.

I have been on the muscle relaxers the pain killers, and tried meds that added more pain like headaches. I would like my simple life back. My simple life would “Beg to differ” by most as it comes with managing pain, and fatigue that leaves a person paralyzed.

I know how to do Fibromyalgia and CFID, but add this and it is spiritual insanity and physically a living death.

It is the day after my injection not thinking of anything but positive thoughts about the medical treatment became a huge let down. I tried to walk a half a block per request to take it easy and not push by my PA. I am in excruciating pain and disappointed with my self. Along with this lack of exercise is the food that I eat and how to stay healthy with my weight because I am not able to move. I have chosen my Chronic Fatigue Immune Disease (CFID) plan no carbohydrates except air popped popcorn, veggies, legumes, and lean protein. It is a strict discipline, but a good one.

I am calling doc tomorrow to let him know that I am not doing well. “More shall be revealed!”

Finally no more crutches!

Finally no more crutches!

Finally doc appointment today. The last seven days have felt like a month of nauseating and excruciating back pain of suffering. This also meant it was a time for Chloe’s training out and about at the doctors today.

Chloe is a one year old puppy this month and still in her training years. Training a pup takes consistency both physically and mentally it is a twenty-four seven job and I am the one to do it!

Our visit at the doc went well. Chloe felt the need to stray away when people would make comments about her because she knows when people are talking about her, smart cookie! This is normal behavior for a service dog in training. Keeping their is crucial. In the patient room she was put in “Down” command which is hard for any pup for any period of time. She stayed down until the PA came in. She got up to greet him and then I had to direct her to “Down” command. She became startled when the PA started to work on my back as she already is watching over me. Chloe was put back into “Down” command. My teacher said I always “Win” which means my diligence has to supersede any thought of throwing my hands up in the air.

My Physician Assistant (PA) Mike is fabulous and is always up and on it when it comes to my healthcare. He has been treating this nerve condition for a few years now. It is now become more prevalent. He said that I need to keep the inflammation down. The mode of action is first a shot of cortisone in arm that will go all over to help with the nerve pain, topical compound cream for the area in question, muscle relaxer and pain pills to keep the inflammation down if needed. The shot should help for the next few days and then repeat the shot if needed. If this continues then we will restructure my care. This means being sent to a specialist to have the nerves in my spine treated to stop the pain.

My PA knows how important it is to keep my core strong and he know that my Pilates Machine is important to my health care. He was supportive in the fact that if I cannot do the Pilates Machine then I will be in more trouble than I am now.

I shared with my PA that me world is narrowing and he reminded me that I do a lot of good stuff for someone suffering with this disease and wants me to keep my goals going as it gives me life and a sense of “Importance” and “Contribution” to the world.

Looking forward to a new day tomorrow. WOOF!


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