Posts Tagged ‘IBS’

Butter Fly Rash

June 20, 2020

Two years ago and half years ago I was struck with a horrific unknown health condition. I was already health challenged and wrote a book on how to cope. Then Butter Fly Rash hit and has floored my physical, emotional & neurological world. The only thing that helped was Zpac antibiotic.

Physically my face broke out in a rash thought to be shingles wasn’t. Then it moved across face around eyes and all over my cheeks and into my scalp. I lost a lot of hair. My skin felt like acid had been pored on my face. The rash had yellow pustules and I itched beyond sanity. My finger and hand joints have started to deform and hurt. My feet couldn’t stop cramping, I had headaches at times and the bones around my eyes ached, At time my vision would blur. My blood pressure would race and pulse. Nausea to the max. My energy level was below zero. I became so weak it was hard to hold myself up. I had a chronic dry cough and phlegm would come up. My brain became attacked and I didn’t know what I was going to do and I became frightened about my life.

I have been on Zpac toal of two years when a friend on FB thought I might have Lupus Miliaris Disseminatus Faciei. After researching what helps I found Zpac and happened to have one in frig. Started taking when my brain would get attacked. It seems to help. Until recently it seems to be wearing off its affects for me.

This has been repeating itself monthly for two and half years now. I don’t know if it was caused by a possible black mold exposure or other bacterias exposed to? Every Doctor had their own theory, Carcinoid syndrome, Breast Implant Illness, Behcets disease, but no one would biopsy my face. My now Physicians Assistant needs to have me go “Under”, so he can help me with biopsies, It will be a dark and frightening place.

All I know is my God is bigger than this!

#TheSecretLifeofHiddenDisabilities

My book “The Secret Life of Hidden Disabilities”

October 15, 2017

Thank you to the UFCW local 135 “The Worker” August 2017 news letter and Communications Director Lori Kern for interviewing me and my book. This last year I had to returned to the union as I do yearly for my pension papers. Lori and I met while I was in lobby with Chloe by my side.  We spoke about me helping a friend with her dog becoming a service dog.

Well a week later, I receive this awesome call that from Lori asking me if she could interview on me and about my book since I had been a retail food clerk and now a retiree. I was beyond elated, and happy, and said, “Yes!”

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