Archive for the ‘water’ Category

The Secret Life of Hidden Disabilities

July 4, 2017
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Hidden Disabilities

September 22, 2014

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Looking at the glass half full. I got my Pilates workout in and the cool thing about my machine is it has a trampoline I can change out from the Pilates bar. No stress on bladder. You Lie down and jump “It is really cool!” It is a really great workout and none evasive to the joints.

I chose the trampoline because I tried to take a walk today with Chloe, and she wouldn’t let me go. My l-5 and SI disc is starting to hurt and walking was painful. Chloe knew!

If we don’t use it we lose it. As a person living with multiple health conditions it is absolutely important to keep the body and spine as strong as I can. Working out releases endorphin’s, and endorphin’s feel good.

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WOOF!

Chloe’s World

September 20, 2014

We can see the light at the end of the tunnel. The antibiotics have kicked in and it feels great. Chloe and I helped a dear friend get to her doctor appointment and CVS. Chloe and I waited at the Vons next store. They have a clean patio area to wait and watch people come and go.

While waiting we met Courtney who works for Vons. Courtney was so kind she offered Chloe H2O while we were waiting for our friend to finish up at CVS. ChloeDSCF6323DSCF6322 also had lots to say today in her doggie language.

FYI: We did find out that Vons and Albertsons have been bought out and are merging. As they say more shall be revealed.

Severe Pain suffering

March 4, 2014

Here it comes and God help me! Chloe is really doing her job even though I hurt I try to get out as best as I can. Chloe is grounding 100% because she doesn’t want me to walk. Good girl Chloe!

What do I do? I have endured insane pain since the middle of Feb  2014 the original pain triggered end of Jan, 2014. It is “Trying my soul” both physically, emotionally and spiritually. My spirituality is so important to me and all I can do is hang on to the belief that God is with me since I spiritually beat. To beat to pound on Gods door. My sanity has turned into a Sunami and I don’t know how to save myself.

I have been on the muscle relaxers the pain killers, and tried meds that added more pain like headaches. I would like my simple life back. My simple life would “Beg to differ” by most as it comes with managing pain, and fatigue that leaves a person paralyzed.

I know how to do Fibromyalgia and CFID, but add this and it is spiritual insanity and physically a living death.

It is the day after my injection not thinking of anything but positive thoughts about the medical treatment became a huge let down. I tried to walk a half a block per request to take it easy and not push by my PA. I am in excruciating pain and disappointed with my self. Along with this lack of exercise is the food that I eat and how to stay healthy with my weight because I am not able to move. I have chosen my Chronic Fatigue Immune Disease (CFID) plan no carbohydrates except air popped popcorn, veggies, legumes, and lean protein. It is a strict discipline, but a good one.

I am calling doc tomorrow to let him know that I am not doing well. “More shall be revealed!”

Finally no more crutches!

Finally no more crutches!

Finally doc appointment today. The last seven days have felt like a month of nauseating and excruciating back pain of suffering. This also meant it was a time for Chloe’s training out and about at the doctors today.

Chloe is a one year old puppy this month and still in her training years. Training a pup takes consistency both physically and mentally it is a twenty-four seven job and I am the one to do it!

Our visit at the doc went well. Chloe felt the need to stray away when people would make comments about her because she knows when people are talking about her, smart cookie! This is normal behavior for a service dog in training. Keeping their is crucial. In the patient room she was put in “Down” command which is hard for any pup for any period of time. She stayed down until the PA came in. She got up to greet him and then I had to direct her to “Down” command. She became startled when the PA started to work on my back as she already is watching over me. Chloe was put back into “Down” command. My teacher said I always “Win” which means my diligence has to supersede any thought of throwing my hands up in the air.

My Physician Assistant (PA) Mike is fabulous and is always up and on it when it comes to my healthcare. He has been treating this nerve condition for a few years now. It is now become more prevalent. He said that I need to keep the inflammation down. The mode of action is first a shot of cortisone in arm that will go all over to help with the nerve pain, topical compound cream for the area in question, muscle relaxer and pain pills to keep the inflammation down if needed. The shot should help for the next few days and then repeat the shot if needed. If this continues then we will restructure my care. This means being sent to a specialist to have the nerves in my spine treated to stop the pain.

My PA knows how important it is to keep my core strong and he know that my Pilates Machine is important to my health care. He was supportive in the fact that if I cannot do the Pilates Machine then I will be in more trouble than I am now.

I shared with my PA that me world is narrowing and he reminded me that I do a lot of good stuff for someone suffering with this disease and wants me to keep my goals going as it gives me life and a sense of “Importance” and “Contribution” to the world.

Looking forward to a new day tomorrow. WOOF!

Chloe’s World

July 25, 2013
WOOF!

WOOF!

Getting caught up with life and Chloe. She takes up most my time and is dealing with weeks now of diarrhea. I have been praying about this asking God “What can I do for her?” She doesn’t go out of turn only the usual times, but is it runny. I can see why going on walks maybe causing her pain. I called Solid Gold nutritionist on hand and she mentioned Digestive Enzymes (DE) as her tummy is over taxed from all the antibiotics she has been on for months now. She is still on some antibiotics for a few more days. I started the D E tonight and will give her some before her dessert tonight.

 

I know with all my heart that she will pull through thrive and have a full life. In the meantime I just lie low and love her up.

 

The Hayliegh Project

December 5, 2012

Here is the article I was asked to write about the benefits of both me and my service dogs use of LDN. I still have to live w/ this horrific disease and lately it has attacked my stomach as if my appendix’s has ruptured.

About my service dog she has gained full use of her back leg that was once atrophied and not of any use.  She is surviving cancer w/ no suffering. Hayliegh still keeps working for me as she wouldn’t want to be anywhere else, but w/ me.

I have purchased a Burley tail wagon for her this way we can stay together where ever go.

Every day I ask God to show me what I can do to give back to the world while living w/ this disease and while being home.  I also share what Hayliegh and I do while we are home.

http://www.ldnresearchtrustfiles.co.uk/docs/July%20Newsletter.pdf

 

We are on page 7 & 8

I love you Hayliegh Muffins!

I love you Hayliegh Muffins!

Haylieghs World

November 4, 2012

Hayliegh next to her Burley tail wagon.

We made the best of this beautiful day. I started w/ lots of pain. I decided to thank God for medication which helped my pain and helped me get going.  We went around Lake Murray on skates and Hayliegh used her wheels.  The lake was sparkling and the dry winds kept the air clean and warm.  Some shots of us at the east end of the lake. My goal is take advantage of every minute w/my little booster she is now thirteen yrs of age and I would like to soak up ever  minute  w/ her.  Goal we were trying to get photos of her in her Burley tail wagon the past photos haven’t shown up well as the wagon is black and so is she.

A great day in San Diego


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