Archive for the ‘attitudes’ Category

My book “The Secret Life of Hidden Disabilities”

October 15, 2017

Thank you to the UFCW local 135 “The Worker” August 2017 news letter and Communications Director Lori Kern for interviewing me and my book. This last year I had to returned to the union as I do yearly for my pension papers. Lori and I met while I was in lobby with Chloe by my side.  We spoke about me helping a friend with her dog becoming a service dog.

Well a week later, I receive this awesome call that from Lori asking me if she could interview on me and about my book since I had been a retail food clerk and now a retiree. I was beyond elated, and happy, and said, “Yes!”

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The Secret Life of Hidden Disabilities

July 4, 2017

The Secret Life of Hidden Disabilities

March 5, 2017

book-official

My book gives a voice to those of us who are living with hidden disabilities, and the discrimination we face whether with, or without the use of a service dog. It seems to have been an unspoken subject. Have you ever gotten out of your car because you parked in a handicap space and you don’t look disabled? Maybe even chased down while someone is yelling at you because they assume you are abusing the handicap space? Have you ever gone to ER to find an ER nurse is hunting you down because you don’t look disabled enough to have a service dog by your side? Some places ask for papers regarding the service dog, and my city doesn’t issue papers. Have you ever gone out to a restaurant only to be harassed by the people sitting near because you don’t look disabled enough to have a service dog. Maybe denied service because they don’t think you are disabled enough to have a service dog. Have patrons ever chased you down in a store because they would like know why you have the dog? Only to be told, “You are not disabled.” This book may open your eyes and hearts for those living with hidden disabilities. My hope is to educate those people around us; so that people living with hidden disabilities don’t have to endure discrimination and can live in peace among-st a sometimes tough world.

By Kimberly Harms Ryan

Woof!

San Diego State Disable Student Services

March 19, 2016

 

I had to go to SDSU today for my taxes. I am sick and detoxing from my health and surgery. Talk about double duty and not feeling well. Everyone helping with my taxes at the Love Library was super compassionate towards me not feeling well and having to assist me with help.

 

I found a great parking spot off Hardy ave. then had to walk through the center of SDSU to the Love Library for my taxes. As I am trying to fill out papers my mind is struggling to focus as I was shaking. I manage to hold myself up barely. Before I go, I inquired about help getting to my car because the stabbing pain in my stomach was more than I could bare.

 

I call the campus security they don’t help people to cars unless night time. I inquire about other options as I am disabled and they gave me the number to Disabled Services. I call and got a very unkind woman / receptionist I presume.

 

I said I am disabled person on campus and need a ride to my car because I am struggling with my health. She says, “We don’t drive people to their cars” I said, “I just need to get close enough to get to my car.” She then hits me with, “How did you get their!?” I am thinking “Really, who talks to a disabled person like this?” A few long minutes go by and see a van go by. I  called back thought they missed me. Called again as I could hardly stand or sit, so then the Disabled Service receptionist scolded me on the phone for calling back.

 

The two men who picked me up in a cart where kind and got me to the very edge of campus grounds and I could see me car….

 

San Diego State Disabled Services will be getting a call on Monday from The Hayliegh Project regarding the hostile treatment towards me as a disabled person. Thoughts what about the other disabled people who call and need help. What about compassion and empathy for people who are disabled?

 

People’s behavior are not a reflection me it is a reflection of themselves. Problem the reflection wounded a hurt woman today and that was me. .

 

I don’t need to hear, “She may have had a bad day” I had a horrific day and didn’t miss treat anyone for my health issues.

Hidden Disabilities

September 22, 2014

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Looking at the glass half full. I got my Pilates workout in and the cool thing about my machine is it has a trampoline I can change out from the Pilates bar. No stress on bladder. You Lie down and jump “It is really cool!” It is a really great workout and none evasive to the joints.

I chose the trampoline because I tried to take a walk today with Chloe, and she wouldn’t let me go. My l-5 and SI disc is starting to hurt and walking was painful. Chloe knew!

If we don’t use it we lose it. As a person living with multiple health conditions it is absolutely important to keep the body and spine as strong as I can. Working out releases endorphin’s, and endorphin’s feel good.

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WOOF!

Chloe’s World

September 20, 2014

We can see the light at the end of the tunnel. The antibiotics have kicked in and it feels great. Chloe and I helped a dear friend get to her doctor appointment and CVS. Chloe and I waited at the Vons next store. They have a clean patio area to wait and watch people come and go.

While waiting we met Courtney who works for Vons. Courtney was so kind she offered Chloe H2O while we were waiting for our friend to finish up at CVS. ChloeDSCF6323DSCF6322 also had lots to say today in her doggie language.

FYI: We did find out that Vons and Albertsons have been bought out and are merging. As they say more shall be revealed.

Hidden Disabilities

September 9, 2014

Chronic Fatigue Immune Disease (CFID). It causes me horrible bouts of debilitating exhaustion; it is insanity at its best. I have different cycles some cause my lungs to feel like a deflated leather football, my vocal cords strain to talk and I am unable to sit up hardly. Sometimes my body aches like the worst flue hit me or like someone took a baseball bat and beat up every muscle in my body. Then there are times where I don’t have any pain and my body is just worn out like a rag doll who sits in a corner.
My temperature can drop down to 97 degrees. My appetite usually stops and when it hits for days I crave my air popped popcorn (my comfort food). I have had people ask me how I stay in shape if I am house bound. I have a chronic fatigue plan that I stick with.
My comprehension can be effected making it difficult to read or obtain any information that is important. I keep things organized because I can forget if I put something in the wrong place.
What is a service dog suppose to do?
DSCF6279 I love you Chloe!

Chloe’s World

August 21, 2014

I just got in from my 2nd epidural and BOY talk about a nerve getting hit! I nearly passed out. My head rushed and I felt like vomiting too! The doc did a good job at trying to change the subject. Then I had to have me lie down, I couldn’t walk for a while my legs went numb. I am home and have weird sensations throughout my body.

Chloe laid on a towel and went to get up a few times and went back to lie down. When the doc hit the nerve she knew. Then when I couldn’t get up the nurse commented on Chloe’s concern for me. I finally greeted her then had to sit for a while because I couldn’t walk.
Chloe is passed out I think it took just as much out of her as it did me!

On a great note before the epidurals made it to Vons and Chloe had to have a pic with her buddy “Jordan” the lovely meat counter young lady! We received flowers from a woman that we help. WOOF!

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Chloe’s World

August 19, 2014

I saw this sign posted at the base of Cowl’s mountain warning people taking their dogs  up during excessive heat. Last month has been horrific heat in San Diego. I saw this man carrying his BIG dog down the mountain as the dog had nothing left in him. I don’t know if the mans dog lived?  

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Chloe’s World

August 15, 2014

This is amazing how do dogs know Chronic Fatigue Immune Disease? My Hayliegh sensed it and would keep me from going anywhere. When driving she would get in the front seat and look at me then look forward as if to make sure I am paying attention.

Chloe is year and a half is staying right by me either in my lap or touching me. I am finding it hard to breath, talk or walk. It is as if the whole central nervous system is shutting down. Lungs feel like an old leather football.

The only way through this health condition. What I mean by this is if I fight it by beating myself up for not being able to do life the longer it sticks around. Emotional energy can take up a lot of space and time. If I allow myself to go through with ACCEPTANCE it seems it will let up sooner.

I stick to my self-care list:
• Thank God for movies and I can tune out for a while or a few days.
• Eat really healthy, like veggies, air popped popcorn, Lots of water or sun tea.
• Light a candles.

I have made my little place a heaven on earth, so days like this I can relax.

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