Butterfly Rash

June 20, 2020

Two years ago and half years ago I was struck with a horrific unknown health condition. I was already health challenged and wrote a book on how to cope. Then Butter Fly Rash hit and has floored my physical, emotional & neurological world. The only thing that helped was Zpac antibiotic.

Physically my face broke out in a rash thought to be shingles wasn’t. Then it moved across face around eyes and all over my cheeks and into my scalp. I lost a lot of hair. My skin felt like acid had been pored on my face. The rash had yellow pustules and I itched beyond sanity. My finger and hand joints have started to deform and hurt. My feet couldn’t stop cramping, I had headaches at times and the bones around my eyes ached, At time my vision would blur. My blood pressure would race and pulse. Nausea to the max. My energy level was below zero. I became so weak it was hard to hold myself up. I had a chronic dry cough and phlegm would come up. My brain became attacked and I didn’t know what I was going to do and I became frightened about my life.

I have been on Zpac toal of two years when a friend on FB thought I might have Lupus Miliaris Disseminatus Faciei. After researching what helps I found Zpac and happened to have one in frig. Started taking when my brain would get attacked. It seems to help. Until recently it seems to be wearing off its affects for me.

This has been repeating itself monthly for two and half years now. I don’t know if it was caused by a possible black mold exposure or other bacterias exposed to? Every Doctor had their own theory, Carcinoid syndrome, Breast Implant Illness, Behcets disease, but no one would biopsy my face. My now Physicians Assistant needs to have me go “Under”, so he can help me with biopsies, It will be a dark and frightening place.

All I know is my God is bigger than this!

#TheSecretLifeofHiddenDisabilities

Butter Fly Rash

June 20, 2020

Two years ago and half years ago I was struck with a horrific unknown health condition. I was already health challenged and wrote a book on how to cope. Then Butter Fly Rash hit and has floored my physical, emotional & neurological world. The only thing that helped was Zpac antibiotic.

Physically my face broke out in a rash thought to be shingles wasn’t. Then it moved across face around eyes and all over my cheeks and into my scalp. I lost a lot of hair. My skin felt like acid had been pored on my face. The rash had yellow pustules and I itched beyond sanity. My finger and hand joints have started to deform and hurt. My feet couldn’t stop cramping, I had headaches at times and the bones around my eyes ached, At time my vision would blur. My blood pressure would race and pulse. Nausea to the max. My energy level was below zero. I became so weak it was hard to hold myself up. I had a chronic dry cough and phlegm would come up. My brain became attacked and I didn’t know what I was going to do and I became frightened about my life.

I have been on Zpac toal of two years when a friend on FB thought I might have Lupus Miliaris Disseminatus Faciei. After researching what helps I found Zpac and happened to have one in frig. Started taking when my brain would get attacked. It seems to help. Until recently it seems to be wearing off its affects for me.

This has been repeating itself monthly for two and half years now. I don’t know if it was caused by a possible black mold exposure or other bacterias exposed to? Every Doctor had their own theory, Carcinoid syndrome, Breast Implant Illness, Behcets disease, but no one would biopsy my face. My now Physicians Assistant needs to have me go “Under”, so he can help me with biopsies, It will be a dark and frightening place.

All I know is my God is bigger than this!

#TheSecretLifeofHiddenDisabilities

Histamine attacks & LDN

June 1, 2019

I have been on Low Dose Naltrexone (LDN) for many years for my fibro & arthritis pain and it has worked wonders. Now I am fighting urticaria, which turns into infected rashes. Doc said my antibodies are attacking me. If correct LDN stimulates my immune system? Does this mean if I stay on LDN & will it cause my body / antibodies to attack me more? Big question do I go off it and suffer horrific pain from all my arthritis and fibro? I have been off LDN about a week for some tests and my pain is beyond.

My Doc shared that I cannot be properly tested for histamine attacks or Mast Cell because I have to live on 1 to 5 antihistamines daily.  She said to test correctly I would have to go off all antihistamines for a week before testing & she doesn’t want me to go off antihistamines and end up in serious trouble.  I am glad she is watching over me.

My book “The Secret Life of Hidden Disabilities”

October 15, 2017

Thank you to the UFCW local 135 “The Worker” August 2017 news letter and Communications Director Lori Kern for interviewing me and my book. This last year I had to returned to the union as I do yearly for my pension papers. Lori and I met while I was in lobby with Chloe by my side.  We spoke about me helping a friend with her dog becoming a service dog.

Well a week later, I receive this awesome call that from Lori asking me if she could interview on me and about my book since I had been a retail food clerk and now a retiree. I was beyond elated, and happy, and said, “Yes!”

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The Secret Life of Hidden Disabilities

July 4, 2017

The Secret Life of Hidden Disabilities

March 5, 2017

My book gives a voice to those of us who are living with hidden disabilities, and the discrimination we face whether with, or without the use of a service dog. It seems to have been an unspoken sub…

Source: The Secret Life of Hidden Disabilities

The Secret Life of Hidden Disabilities

March 5, 2017

My book gives a voice to those of us who are living with hidden disabilities, and the discrimination we face whether with, or without the use of a service dog. It seems to have…

Source: The Secret Life of Hidden Disabilities

The Secret Life of Hidden Disabilities

March 5, 2017

book-official

My book gives a voice to those of us who are living with hidden disabilities, and the discrimination we face whether with, or without the use of a service dog. It seems to have been an unspoken subject. Have you ever gotten out of your car because you parked in a handicap space and you don’t look disabled? Maybe even chased down while someone is yelling at you because they assume you are abusing the handicap space? Have you ever gone to ER to find an ER nurse is hunting you down because you don’t look disabled enough to have a service dog by your side? Some places ask for papers regarding the service dog, and my city doesn’t issue papers. Have you ever gone out to a restaurant only to be harassed by the people sitting near because you don’t look disabled enough to have a service dog. Maybe denied service because they don’t think you are disabled enough to have a service dog. Have patrons ever chased you down in a store because they would like know why you have the dog? Only to be told, “You are not disabled.” This book may open your eyes and hearts for those living with hidden disabilities. My hope is to educate those people around us; so that people living with hidden disabilities don’t have to endure discrimination and can live in peace among-st a sometimes tough world.

By Kimberly Harms Ryan

Woof!

An Aha Moment!

January 8, 2017

An aha moment!An aha moment and what sparked it? It was about a months ago, on a sunny brisk day a friend and I went on one of our walks and we always incorporate a big hill or two.  I always pray …

Source: An Aha Moment!

How do I stay focused on tasks or activities

January 7, 2017

How do I stay focused on a task or activity? I have learned in life it takes more energy to procrastinate then it does to actually get things done. Sitting and repeatedly think about “what needs to be done” is exhausting.   One day …

Source: How do I stay focused on tasks or activities


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